Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

I'm sorry to hear what you are going through. My X-husband's girlfriends son has autisim. There are great support groups for that with a lot of information. I know she had her son in the StonyBrook program for awhile and that seemed to help him a lot. He also had a few other problems as well though.
for you

Re: NWR: But I need some support right now...

I am an occupational therapist and I currently have a few autistic children on my caseload. One of my children on the spectrum is doing fantastic they year in school!! There is so much out there that we can do for autistic children. Do you know where is he on the spectrum? More toward the severe end or toward the higher functioning end??

Re: NWR: But I need some support right now...

I worked with autistic children throughout college. # of them are currently enrolled in regular public schools. You wouldnt know anything was different about them. Some reading disabilities but thats it. The research going on right now is TREMENDOUS. Please dont think you hit a dead end. WHile I am sorry this happened to you, I would get 2nd, 3rd and 4th opinions as well as solutions for care.


I pray for your family
Nancy

Message edited 3/23/2006 6:42:11 PM.

Re: NWR: But I need some support right now...

They have made such big strides with autism that there is no need to worry. I would ask your doctor when is the earliest they can detect autism and have your baby tested. I would not worry about the baby though. You can cross that bridge when you come to it if need be.

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

my 7 year old is autistic and has come a looong way since he was three. i also have a four year old and a four month old and they are both fine!!! there is hope!!! best of luck to your family there is alot of information out there. you have fm.

Re: NWR: But I need some support right now...

I am a special ed. teacher and autism consultant. I now live in NC, but I worked on LI for 4 years and have a lot of wonderful contacts in the area of ABA. If you have any questions or need to figure out who to talk to next, FM me and I would be glad to help. You are in a GREAT area to get services for your son. (NC is strides behind NY!). The first thing you need to do is learn your rights and what services your son is entitled to and go get them! You will be his biggest advocate now and he will be an amazing inspiration to you and everyone who he comes in contact with
I am praying for you and your family.

Re: NWR: But I need some support right now...

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Posted by tara51799

I am an occupational therapist and I currently have a few autistic children on my caseload. One of my children on the spectrum is doing fantastic they year in school!! There is so much out there that we can do for autistic children. Do you know where is he on the spectrum? More toward the severe end or toward the higher functioning end??

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Re: NWR: But I need some support right now...

Thank you all for all your help and advice. I just wanted to let you all know that I did have Luke tested under the Early Intervention program shortly after he turned 2. This was right around the time he was also diagnosed with Epilepsy. He has been receiving speech and special ed. services for about a month now, and already I have seen improvement. What I didn't realize is that the symptoms of Epilepsy and Autism are so similiar.
He is currently seeing teachers from Just Kids Early Learning Center and they are fantastic! I know they have an Autism program, but it has a waiting list, so we are going to look into it.
I think I was more shocked and sad when I wrote the original post. I feel tons better now after reading all your posts and looking at the resources you've all sent. Thank you again so very, very much!

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

Make sure you take him to a specialist and get him into therapy early. THey can do wonders when the start asap.

I've slways heard though that autism isn't supposed to be diagnosed until age 6.

Re: NWR: But I need some support right now...

Please stay positive. we are all here for you

Re: NWR: But I need some support right now...

What a sweet little boy, he is adorable!

Re: NWR: But I need some support right now...

The women who've already posted are sooo right! There is so much progress and research in autism - they're really made tremendous strides and you are lucky to be in this area - the services here are outstanding! Good luck to you - and many thoughts and hugs and prayers for you and your family!

Re: NWR: But I need some support right now...

I can certainly understand how you may feel. I too teach children with autism and it is common for a parent to go through a period of mourning (for lack of a better term) when their child is given a diagnosis. Once you are ready, you will need to be a proactive and strong advocate for your child, Make sure you get every evaluation possible and know that your home school district is under obligation to provide any additional service he may need (ie speech or OT) Don't give up hope. Children and adults with autism lead extremely productive lives. Two of my students are transitioning to a high school with diploma bound program for kids with varying disabilities. I hope this helps.

Re: NWR: But I need some support right now...

I am sorry that you have to deal with something like this, but with all the new things that they can do for autism just keep your head up high and everything will be ok.
One of my friends daughter is autistic and with the right meds she is fine.

Re: NWR: But I need some support right now...

There are degrees of autism and many different ways to teach/ handle children with autism. Everything will be ok. You're not alone when you have all of us!

Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

My moms good friend's grandson has autism and he is doing really well.

Message edited 3/23/2006 8:50:35 PM.

Re: NWR: But I need some support right now...

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Posted by VadersBride2006

Thank you all for all your help and advice. I just wanted to let you all know that I did have Luke tested under the Early Intervention program shortly after he turned 2. This was right around the time he was also diagnosed with Epilepsy. He has been receiving speech and special ed. services for about a month now, and already I have seen improvement. What I didn't realize is that the symptoms of Epilepsy and Autism are so similiar.
He is currently seeing teachers from Just Kids Early Learning Center and they are fantastic! I know they have an Autism program, but it has a waiting list, so we are going to look into it.
I think I was more shocked and sad when I wrote the original post. I feel tons better now after reading all your posts and looking at the resources you've all sent. Thank you again so very, very much!

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Re: NWR: But I need some support right now...

Re: NWR: But I need some support right now...

MOst men are in denial b/c they cannot deal with there children being labeled. My boss's son is 5 and has PDD ( a form of autism) and he is extremely bright. It depends on how severe it is and what it effects. They sometomes have "stims" that they do more often like repeating words or rocking but if you allow these behaviors just for a few moments then ask him to stop and reinforce that he stop that will work down the road. My sister in law works with autistic children and my other sister in law has an autistic nephew 4y/o. His brother is 2 and hasn't shown any signs as of yet.
Feel free to FM me.
I will also recommend thatyou educate yourself as much as you can.

Re: NWR: But I need some support right now...

my prayers are with you and your family

Re: NWR: But I need some support right now...

Im so sorry to read this, but please realize that this isn't the worst news you could have received. FH's son is 6 and has autism. He was 3 when I first started dating FH and he has made tremendous improvements. He is in mainstream schools and socially doing wonderful. Good Luck and keep your chin up.